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Hunter's Hope Foundation Charity Profile
The Hunterís Hope Foundation was established in 1997 by Pro Football Hall of Fame member and former Buffalo Bills quarterback Jim Kelly and his wife, Jill, after their infant son, Hunter, was diagnosed with Krabbe Disease (Globoid-Cell Leukodystrophy). The Foundation is the Kellyís lifelong commitment to increase public awareness of Krabbe Disease and other leukodystrophies, as well as to increase the likelihood of early detection and treatment. The Foundationís goal is to fund research efforts to identify new treatments, therapies and a cure for Krabbe Disease. To date, through the Foundation over $14 million has been awarded to leukodystrophy and other neurological disease related research.
Our Mission: Hunterís Hope Foundation was established to address the acute need for information and research with respect to Krabbe Disease and related Leukodystrophies. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of these fatal illnesses. Accordingly, our mission is four-fold:
To broaden public awareness of Krabbe Disease and other Leukodystrophies thus increasing the probability of early detection and treatment.
To gather and provide current, functional information and service linkages to families of children with Leukodystrophies.
To fund research efforts that will identify new treatments, therapies and ultimately, a cure for Krabbe Disease and other Leukodystrophies.
To establish an alliance of hope that will nourish, affirm and confront the urgent need for medical, financial and emotional support of family members and those afflicted with Leukodystrophies.
Among the essential goals, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for these precious gifts of life. These bedrock values are categorically and vigilantly expressed throughout all of the Foundation's programs and activities.
Hunter's Hope Foundation Volunteer Information
Here we try to keep you filled in on what's happening with Hunter's Hope, and where we need volunteers.
Hunter's Hope Foundation Donation Information
Your generosity will enable us to continue to bring awareness about the importance of newborn screening and make a difference in the lives of thousands of children throughout the United States.