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Parent Project Charity Profile
Parent Project Muscular Dystrophy is the largest nonprofit organization in the United States focused entirely on Duchenne.
We take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options.
Only this comprehensive approach will lead to the ultimate success—the day that 100% of those diagnosed can turn to a treatment that will end Duchenne. Parent Project Muscular Dystrophy’s mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy (Duchenne) through research, advocacy, education, and compassion.
To identify, support, and share promising Duchenne-related research.
To make state-of-the-art information about treatment and care options available to all members of the Duchenne community.
To pursue strategies that will impact this generation of young men affected by Duchenne as well as future generations.
To encourage policymakers to afford the same priority to Duchenne as they would to other disorders of similar incidence and prevalence.
To create a supportive community for people affected by Duchenne.
To participate actively in the international Duchenne community.
To ensure that PPMD is managed, developed, and funded in a manner consistent with nonprofit industry best practices.