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http://www.rarediseases.org/
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National Organization for Rare Disorders Charity Profile
Mission: The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. For almost twenty years, NORD has served as the primary non-governmental clearinghouse for information on rare disorders. NORD also provides referrals support groups and other sources of assistance.
National Organization for Rare Disorders Donation Information
Your donation helps NORD serve the 25 million Americans who, because their diseases are rare, might otherwise be forgotten.
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