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http://www.alportsyndrome.org
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Coverage: National
Categories: Medical, [ view all ]
Alport Syndrome Foundation, Inc. Charity Profile
The Alport Syndrome Foundation is an organization formed in 2007 by families affected by this disease. We are a non-profit corporation but are essentially a group of concerned families and friends that found it difficult to locate concise, useful and easy to understand information about this disease on the web. We recognize that there is a lot of information available, but it is often technical, confusing, and overwhelming - especially to those who are newly diagnosed. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to ultimately support research aimed at curing the disease.
Alport Syndrome Foundation, Inc. Volunteer Information
One person can make a difference and you can be that person! Volunteers are vital to the success of the Alport Syndrome Foundation. We welcome volunteers with a wide range of talent and skills. There is only one requirement – your desire to make a difference in the lives of patients and families dealing with Alport Syndrome.
Alport Syndrome Foundation, Inc. Donation Information
All fundraising will be done on a volunteer basis in an effort to minimize expenses and maximize the funds available for programs and research. No paid professional fundraisers will be used. Donations are tax deductible as the Alport Syndrome Foundation has been granted Tax Exempt Status by the Internal Revenue Service under section 501(c)(3) of the Internal Revenue Code.
The donation that you make today will help us continue to make a difference in the lives of those affected by Alport Syndrome.
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Alport Syndrome Foundation, Inc.
